Surgery Day One

 In pre-op with her new IPAD to keep her company.

 Kisses from Mommy and Daddy to send her off to surgery.

 Not happy..... It was a rough first day for our little princess. Pain control issues, her oxygen sats kept tanking and she did not tolerate the first meds put in her g-tube. We are praying that's not a pattern, but her tummy has to "wake up" and so far it has shown it's still fast asleep.

Kids like her can have GI motility issues which can go from bad to worse. We are praying that her tummy is just sluggish, but will tolerate the Pedialyte that they will try tonight.

Until she can tolerate that, she cannot progress to formula. Since we are stopping all oral feeds for at least two weeks, we really need her to get that tummy going so she can get some nutrition.

 Her new Mic-Key button. She had her stomach stitched to the opening in her skin, so that if she has leakage, it won't be into her abdominal cavity. OUCH.
Mito kids can only tolerate so many medications from what we've been told, so pain control has been a challenge. She gets short bursts of relief, but not long enough in my opinion.

Because she was so uncomfortable, she didn't sleep AT ALL. She is hungry, exhausted, having pain that has yet to adequately be controlled, and her oxygen dipping to the low 70's and then back up again as well as the need to suction gunk out of her little lungs.

Rough day.

Praying for a better day tomorrow.

Thanks for all the prayers for our little angel. We covet those.

Comments

  1. Grandma and GrandpaNovember 4, 2011 at 9:09 PM

    So happy to get this blog! Praise The Lord for the successful surgery. We are praying for the adjustment now, praying that day 2 will be brighter. Such a precious child; we can't imagine two weeks with nothing to eat for someone like her who likes to eat!

    ReplyDelete
  2. EllenNovember 4, 2011 at 9:39 PM

    Praying for all of you and trusting our heavenly Father to give you all strength, peace, healing and even joy in the midst of this trial.

    ReplyDelete
  3. JenniferNovember 4, 2011 at 10:20 PM

    You guys are in our prayers. She is such a gift and a precious child. My love and prayers to you all.-Jennifer Griffin

    ReplyDelete
  4. TeresaNovember 4, 2011 at 11:01 PM

    Praying for you all!

    ReplyDelete
  5. SueNovember 5, 2011 at 12:14 AM

    I will keep all of you in my prayers. I like working with the Mic better then the tubes. I hope her tummy kicks in soon.

    ReplyDelete
  6. maggieNovember 5, 2011 at 8:27 AM

    I hope today is better for her. I'm praying!!

    ReplyDelete
  7. Lee AnnNovember 5, 2011 at 8:46 AM

    Praying for a better day today! Hoping you got a little sleep!!

    ReplyDelete
  8. NavhelowifeNovember 5, 2011 at 10:33 AM

    love to all, and praying for that tummy to wake up and pain to go away.

    ReplyDelete
  9. DonnaNovember 5, 2011 at 9:40 PM

    Oh my, I sure hope things get better quickly. Hate to see your baby so sad :(

    ReplyDelete

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