Surgery Days Two and Three

Friday night was a long night for our sweet girl.

She vomited her pedialyte so all feeds were stopped.

She yanked the tube coming from her button. 

Not once but twice.

She almost got her IV out too.

We thought some twin time was in order.

 Saturday we brought Sofia while my sister graciously kept the biggies.

Sofia was VERY concerned about her twin:

"Celia you look like a train wreck girl. 

Let's bedazzle you."

 Sweet Sofia made it HER JOB to cover Celia 

with as many stickers as her legs, arms and nightgown could hold.

 They watched movies together.

Sofia picked out some balloons for Celia.

And held warm compresses on her tummy.

And they shared a little...

 Twinny Love.

Precious doesn't begin to describe how Sofia was with her.

Celia even felt like taking a little walk around, so we got a little morale boast too.

So for the down and dirty;

She narrowly avoided another surgery as our Dr was concerned about the vomiting episode and gave her one more shot at keeping the Pedialyte down before taking her back to the O.R. to go through her intestines instead. She is medically fragile(a term we HATE) so she cannot go very long in allowing her tummy to not receive nutrition.

THANKFULLY, last night she tolerated that darn stuff, and today she started formula feeds.

So far, so good.

If she can handle them tonight as well, we are hopeful she can come home tomorrow.

She will come home off all oral feeds for awhile to allow her lungs time to heal.

The hope is, that she can return to oral feeds, but we don't have a guarantee.

We have to feed her 1 hour formula feeds SITTING UP (so she doesn't aspirate)

every 3 hours. 

With time to set up, clean up, return her to bed at night, etc...

Basically, we are never going to sleep ever again.

Ha!

We now have a lovely IV pole in our kitchen.

Yes we do.

Now we just need to get her home and figure all this out.

Do we feed her via tube before the family eats so she is full when she smells food?

Do we tube feed her as she watches us eat?

What is our "new normal" for our family now regarding food, snacks etc?

It seems a bit cruel to have her watch everyone eat, but on the other hand, we want her a part of the family at the dinner table...

Sigh.

We have lots of decisions to make, but for now we are praying she will come home tomorrow.

And a sweet story:

Gianna: "Mommy I almost burst out crying when I saw Celia. I want her home. I miss her."

Aria:"Well, I did cry. We aren't like puzzle pieces that are all broken up. 

We are a family and we need to be together."

I couldn't have said it better myself.