Sleep Deprived Part two.

There is a part two you ask?!?

I know, right.

We need even more excitement in our lives.

And there are only SO MANY hours in one night.

However, sweet Celia would like to keep us on our toes for as many of those hours as she possibly can.

If it's not feed issues, it's FEET issues.

That girl is a sensory-seeking movement machine.

Think crocodile death rolling slithery octopus with arms and legs everywhere!

She has been getting her leg and/or arms stuck through the bars of the crib for several months now.

I'm sure she wakes up when the circulation cuts off- Poor thing!!

Adding to our parenting bag of tricks, we now offer limb removal anytime..... day or night- HA!!

More concerning, however, is that she has hit her head and gotten a few good sized goose eggs on her head with all that thrashin' and rollin'.

The crib isn't growing with her, unfortunately.

Since crib bumpers aren't safe, and she OBVIOUSLY needs a larger sleep space, added to the fact that her pulmonologist and GI doc both want her elevated when she sleeps (which is impossible in her crib because she crumples at the bottom), let me introduce you to what we HOPE AND PRAY insurance will approve for her:


It would elevate her head and feet so that she could actually stay elevated, and it has high glass windows so she would no longer get stuck and it's a twin so she would have lots more room. It even comes with an IV pole and holes drilled for her g-tube goodies.

It would be life-changing for all of us, and {GASP} just might allow her sleep-deprived parents to sleep without one eye open.

Aetna has been wonderful to us. They really have. We have nothing but wonderful things to say about them. I am hoping and praying that they will approve this as well.

 I have called all the lending equipment places as well as "Friends of the Disabled" (who gave us her outdoor go-go and a chair- FREE!) but no one has anything available. 

So, yeah, if you think of it, could you pray it's approved? 

Her weary parents thank you in advance.



Comments

  1. VDecember 31, 2011 at 4:06 PM

    First of all... Happy New Year!!!... I hope 2012 brings health and happiness to you and your family! (and many hours of sleep)
    I love to read about your girls, I hope Celia gets better soon.

    ReplyDelete
  2. Grandma and GrandpaDecember 31, 2011 at 4:49 PM

    Wow; what a bed. That would truly be a blessing to all concerned. We will certainly be in prayer for the approval. While your descriptions of her twisting, turning and tangling have brought smiles to our faces, we also know it can be dangerous. So, we'll be praying. Happy New Year!

    ReplyDelete
  3. KJanuary 1, 2012 at 3:57 AM

    I'm behind you! It's so great to hear that your insurance company has been good to you.

    ReplyDelete

Post a Comment

Popular posts from this blog

How Can It BE??

Image
It's been almost a year since I've posted and for some strange reason, I found a few extra minutes in my day( crazy, huh?) and thought I would catch-up the TWO WHOLE people who might still be checking in now and then. On May 11, 2014 our world was changed in the sweetest way with the birth of our granddaughter. And GUESS WHAT?!? All those stupid , ahem , quippy things said by grandparents everywhere, are, in fact, TRUE! She is the sweetest, smartest little treasure EVER and I would definitely have been a grandma first if I knew how amazing this is. (Sorry, kids.) And we have the privilege of having her 1-2 days per week, which makes this MiMi blissfully happy but also a tad busy. She is now 10 months old, and can tell you what an elephant and a lion says. She is determined to grow up as quickly as she possibly can, and plans to start walking yesterday. She is a GO-GETTER and is on the move. Having her weekly is such a precious gift. I love it that my grown kiddo...
Read more

The Blessinngs of the Lord make rich...

Image
 Matching PJs and ready for bed. Aren't they adorable?  My and ALL FOUR of my daughters. My cup really runs over!!  Gianna and Celia. I am glad that we prepared ourselves for CP. She is only hypontic in her neck, but she is spastic in her arms, so she is resourseful and uses her feet to grab toys you hold up for her. She is happy, smiley, and sweet as sugar. I am not upset so understand I am saying this as more matter of fact, but she is like a 6 month old in every way. I pray for her sake that some good therapy and nutrition will help her tremendously. She is definitely on the more severe end of CP. We are not shocked, in fact I really expected this end of the spectrum. Please don't feel "sorry" for us or her. She is a blessing and we are privileged to be called to such a child.  Right after we got back to  the hotel room. Sofia only wants ME or Aria. Or she is crying pretty hysterically. We don't mind- at least I have some one to take turns with if I need ...
Read more

Oh what a difference 24 hours makes.

This morning, the PICU nurse announced that we would be moving to the floor today.  I argued with her. I begged. I offered lunch and dinner for the whole PICU staff if they would keep us just one more night.  You see,I spent last night pressing her morphine button every 30 minutes all night long. The nurse came in every hour. She had to check her THREE IVs. Her chest tube that was draining a tremendous amount of blood. Her pain was hard to manage. Her heart rate elevating was our biggest clue, because she never complained. She had a high level of oxygen needed to keep her stats up.  I liked the comfort of knowing that we had one nurse, right outside the door, whose only job all night long was to monitor Gianna and fix every problem as it arose. The nurse laughed and said, "Don't worry she'll be ready. Oh, and she needs to get up and walk today..." What?!??!? It has been LESS than 24 hours since she had major surgery. And then the flurry started. Xrays were taken. Thre...
Read more