Setting the record straight.

Very few of our family and friends outside our local area have met our little twinnies. Because of that, this blog is a main way that they keep updated on our girls. Truth be told, that is the primary reason I keep up the blog- to keep those folks "in the know" on the goings on of the girls.
(Well, and I stink at baby books, so I will have my blog published at some point, so there's that too.)

Anyhoo, It has come to my attention that I may have inadvertently misrepresented Celia and her progress with the photos and updates that I provide.

Within the last week, we have had SEVERAL family members(who have not met her) state that it appears Celia's CP is mild based on my glowing reports on my blog.

I wish that was true.

The fact is, that despite all the milestones that I have been documenting on Celia's progress, she has SEVERE CP.
There's no other way to say it.

She has brain damage- she can't get worse, and she can certainly progress with lots and lots of therapy...

BUT-

She may never sit up, because of her severe hypotonia( floppiness) in her core and neck.
So while it is AWESOME she can hold her head up without wobbling for 2 minutes, that is a LOOONNGGGG way from being able to hold it up, say, all day long.

If she cannot sit up and hold her head up she won't be able to walk unassisted.
So while she can stand in her stander, walking unassisted most likely is not in her future. In fact, we have an appointment tomorrow for a wheelchair.

She cannot self feed, help in any way shape or form to dress herself, and may not be able to potty train.
So while she tries with Mr. Fork, the reality is, that her hands just don't work well, and she cannot get the coordination to self feed enough to keep a fly alive.

So, while she IS making huge strides, there are so many hurdles ahead of her... just to be able to SIT UP for a minute or two.

I hate to write this post, but I also don't want to misrepresent our sweet baby girl to those who love her from afar.

What I don't post, are the pictures of her with her head flopped, her hands tightly fisted and she is drooling in concentration- for every five of those pictures, I get one with her sitting up.
I am guilty of posting the pictures that show her upright.... for the second or two that the camera was able to capture it.

And let me say, once again, that she is simply perfect in every way. She is our miracle and we absolutely adore her-severe CP and all.

And I just know all our family and friends waiting to meet her will EAT HER UP in all her juicy goodness.

And this little public service announcement in NO WAY diminishes the strides this girl has made in 14 weeks. She EATS, she TALKS and she can ROLL OVER and she SCOOTS and she is the MOST PERFECT little Celia Diane XiYi that we could ever hope to parent.

CP doesn't define her.

Her sweet and joyful spirit does.

And when we look at her... THAT is what we see.

I know when you meet her, that is what you will see too.